Things that have helped me
Hello everyone
I am a new member and have enjoyed reading your emails and find comfort in
the fact that there are other people out there like me striving to control
their symptoms.
I would therefore like to share with you some things that have helped me. I
have been a psoriasis suffferer for 27 years now and had good and bad times.
I have been free from scalp psoriasis for the last 5 years since discovering
Kerastase shampoo for sensitive scalps, which not only has helped the flaky
skin but keeps my hair in great condition too.
I recently developed very dry and painful skin on my face, which I am still
unsure what it was, eczema or psoriasis or other! I have substantially
improved this by washing and moisturizing with Avene products. These are
made from spa water and don’t take moisture out of your skin when you wash.
I wish everyone well in their quests for improving quality of life and will
keep you updated on my findings. I am due to go on a clinical trial for a
new drug in May which I hope will work.
Thanks for listening
Tracy (in the UK)
April 14th, 2004 at 6:55 pm
Hi,
I’d like to know if anyone is using this drug called Protopic. It falls
under the drug category known as topical immunomodulators, which also
work on the immune system, but without the side effects commonly caused
by steroids (oral or topical). There have been some interesting research
regarding this drug and its effectiveness, and I was wondering if anyone
out there would be willing to part with some knowledge if they have
some.
Also, since I’m not in the West, it’s a little hard for me to source
this drug. I currently live in Malaysia, so if anyone knows about
sourcing this drug from a region nearby, do share this information.
Many thanks and blessings,
Boon.
April 15th, 2004 at 7:16 am
I’d like to know if anyone is using this drug called Protopic. It falls
under the drug category known as topical immunomodulators, which also
work on the immune system, but without the side effects commonly caused
by steroids (oral or topical). There have been some interesting research
regarding this drug and its effectiveness, and I was wondering if anyone
out there would be willing to part with some knowledge if they have
some.
Also, since I’m not in the West, it’s a little hard for me to source
this drug. I currently live in Malaysia, so if anyone knows about
sourcing this drug from a region nearby, do share this information.
Many thanks and blessings,
Boon.
April 15th, 2004 at 8:15 am
I’d like to know if anyone is using this drug called Protopic. It falls
under the drug category known as topical immunomodulators, which also
work on the immune system, but without the side effects commonly caused
by steroids (oral or topical). There have been some interesting research
regarding this drug and its effectiveness, and I was wondering if anyone
out there would be willing to part with some knowledge if they have
some.
Also, since I’m not in the West, it’s a little hard for me to source
this drug. I currently live in Malaysia, so if anyone knows about
sourcing this drug from a region nearby, do share this information.
Many thanks and blessings,
Boon.
August 9th, 2004 at 6:24 pm
Protopic is made by Fujisawa in Japan. It should be available in your
country. Do a web search on ‘Protopic’. Another alternative in the
same class is Elidel.
I started using it on the non-specific dermatitis that has been
causing a progressive thinning of the skin of my penis for the opast
7-8 years. This is day 2 and I have had no sensation of burning or
itching. It seems to work well. My only concern now is finding a
hypoallergenic bar soap for washing that area in the shower. My derm
also prescribed Aquaphor as a moisturizer.
These immunomodulators are so new that it took me a year, 2 GPs, 1
urologist and 4 dermatologists before I found one that made the right
call. The others (including a top teaching derm in NYC) wanted to
biopsy me and apply steroids. Hydrocortisone gave me a skin ulcer in
a week! After my experience with the medical community I’m glad it’s
not a life threatening condition!