New to Group-Atopic Dermatitis
Hi Carisa -
My name is Kristen and I am new to the group. I am 32 years old and
have had atopic dermatitis for as long as I can remember. This time of
year, with the changing of the seasons, my skin never fails to flare-
up. Not only do I experience SEVERE flaking, but my face cracks in just
about every crease. Right now I’m cracked in the corners of my mouth,
eyelids, chin, and earlobes. Also, I can’t fail to mention the intense
itching I’ve been experiencing on my neck (this is a new one). I’m
currently recieving no treatment for my condition, as I refuse to go
back to my dermatologist. I have actually learned more from this group
by reading past messages and you have also confirmed some of my own
suspicions. To get to the point, I am very interested in learning about
your Flower of Wellness program. If you would, please send me a copy.
I would also like to ask you, or any other member, any knowledge you
may have about Dermatitis Herpetiformis. I’ve actually not been
diagnosed, but I sometimes get a blister-like patch on the inside
crease of my arm that reoccures in the exact same spot. I originally
thought it was a spider bite because that’s what it looks like and it
behaves much differently than my dermatitis. But after the third
reoccurance I ruled out that possiblity and my dermatologist still
doesn’t know what it is. Being that I also suffer from food allergies
and numerous food sensitivities, I wonder if Dermatitis Herpetiformis
could be what it is?
Any info that you, or anyone, may have would be greatly appreciated!
Thank you,
Kristen
March 13th, 2006 at 9:21 am
Hi Kristen. I am a mother of a 3 year old with
eczema. I was just wondering if you could answer a
couple of questions for me…..I understand that they
may be specific only to my little girl and not apply
to everyone with eczema. Abby really does not like
the bath. We have resorted to very short showers with
room temperature water (she hates any warmth at all).
She cries the whole time (minute or less). Then she
really screams and cries when we apply either african
shea butter or pure unrefined coconut oil after her
shower. We do not dry her or use any soaps. Since
you are a person who has suffered with eczema for a
long time, I thought maybe you would have some insight
for me. Also, where do you live and what times of
year are better for your skin?
Thanks…Nikki
March 14th, 2006 at 3:40 am
> I would also like to ask you, or any other member, any knowledge
you may have about Dermatitis Herpetiformis.
I am in remission from dermatitis herpetiformis and have shared my
experience previously at this group #5033 titled healing crisis.
The first thing I did is to stick to gluten free and dairy free diet
and to take digestive enzymes to ensure proper digestion. This helped
to clear my skin dramatically. The residual skin problem is treated
with anti-parasite tincture both orally and topically. I also do Clark
zapping, take ozone baths, adjust my diet and take nutritional
supplements, etc., depending on results of medical reports and my skin
conditions. Hope this helps.
Regards
ymp
March 14th, 2006 at 10:47 am
Hi Nikki,
My son has atopic dermatitis and the water burns his skin like crazy!! I didn’t
believe this until I experienced it myself but it is true. We always have
extremely short showers and a bath is very rare. It is hard because I keep
olive oil (which has a smell) on him constantly. I am sure you have found that
you have to take this day by day as every day is different. Just when I think
it’s better - we get knocked down again. We’ve just found that he has many food
allergies. Wheat free seems the way to go but it is HARD feeding a child with no
wheat! He is 10 now but has had eczema since 4 yrs. old! They could never
test for allergies because of his skin flare-ups. I have tried every medicine
on the market and they work for a day or 2 but that’s it. Now I am trying
different oils (which you will read about here) and just started Flor-Essence
Tea. Which is good for all ages.
Good Luck to you. I know this is a very trying time.
Cathy
Thanks…Nikki
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March 14th, 2006 at 5:16 pm
Cathy/Nikki,
On the subject of Wheat Free. I’d like to make a point, that you may, or may not
be aware of. When health foods leave some of the wholesalers for the retail
shops, they are packed in boxes, which are filled with an alternative
(biodegradable) to polystyrene, while the alternative is sometimes made from
Corn starch, it can also be made from wheat starch, so if possible, don’t let
your child handle the packaging. My husband is a sufferer, and also has wheat
intolerance, the effect of the package on his skin is far more acute than eating
it! We own a health shop, which he runs.
I do the allergy testing and use a RM10S machine, which is non-invasive. Where
children with sensitivities are concerned, I divide the test into two, three or
four sessions, I find this much better and less likely to traumatise.
March 15th, 2006 at 12:07 am
Joanne,
Thanks for the info - this situation is becoming unreal. I can’t learn enough -
this website is my sanity.
Thanks again
Cathy
On the subject of Wheat Free. I’d like to make a point, that you may, or may not
be aware of. When health foods leave some of the wholesalers for the retail
shops, they are packed in boxes, which are filled with an alternative
(biodegradable) to polystyrene, while the alternative is sometimes made from
Corn starch, it can also be made from wheat starch, so if possible, don’t let
your child handle the packaging. My husband is a sufferer, and also has wheat
intolerance, the effect of the package on his skin is far more acute than eating
it! We own a health shop, which he runs.
I do the allergy testing and use a RM10S machine, which is non-invasive. Where
children with sensitivities are concerned, I divide the test into two, three or
four sessions, I find this much better and less likely to traumatise.
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March 15th, 2006 at 5:29 am
Hello Nicki, just wanted to add my 2 cents worth to the discussion… I have
been an eczema suffer since I was very young. I am now 35 and still am dealing
with this stuff.. All the doctors said I would grow out of it. I am still
hoping… Anyways, when my skin flares up, it seems like everything causes it to
itch… even olive oil doesn’t help… The only relief that I am able to find is
if I take a long soothing bath in sea salt (1 cup).. and then maybe an oatmeal
bath..I am able to sleep soundly thru the night without scratching (which is a
big deal for me). Anyways, regarding allergy testing, myself and my son had
blood taken and they were able to tell from that what we were allergic to…
David
March 15th, 2006 at 9:03 pm
Hello David,
With the blood test and what it showed you are
allergic to — if you avoid those things are you
better? How much better? Do you think that the blood
test could of messed anything?
I received a blood test about a month ago and it only
said that I am allergic to 4 things (and things that I
would of not thought of) bananas, pineapple, white
potatoes, and asparagus. I don’t eat those things and
I still have severe eczema — pretty much every day
it’s on a big part of my body.
I’m pretty certain I’m allergic to airborne allergens
but they always say that food is the biggest factor
with eczema……
I’ve also had it since I was young, now I’m 38.
Peace,
Shannon
March 16th, 2006 at 1:28 pm
Hey everyone,
I have been in this group for awhile and have tried MANY creams, lotions,
prescription stuff, etc. to try to get rid of my Eczema. To make a long
story short, I bought some anti-wrinkle eye cream and was impressed with
it’s ability to keep my skin moisturized. (My eye area dries out because I
get eczema there) Anyhoo, I have tried TONS of anti-wrinkle/eye creams and
since I have sensitive skin I can’t use most of them. I decided to try it on
my eczema and for some reason it is healing it! I can’t believe it!
I have only been using it for about a week and a half now but I will keep
you guys up-to-date with the results. The cream is called: "Skin Essentials
ProVectin Plus Advanced Eye Cream" and is distributed by Walgreens. (It’s a
generic form of Stri-Vectin, a popular anti-wrinkle cream that is very
expensive) They have regular wrinkle cream also (I guess for your whole
face?) but I haven’t tried that yet.
I have to put it on at least 3 times a day and I put a couple of coats of
it on at a time. I also like that it has no fragrance and doesn’t irritate
my eyes like all the other eye creams. We will see what happens….
Alison
March 17th, 2006 at 4:09 am
Hello, well, to tell you the truth, I haven’t been able to avoid all that I am
allergic to yet. The Dr ran lots of items such as pollens, molds, dust mites
and foods and I am allergic to most all outdoor trees/grasses, and dust mites
are a major one… I am planning on getting hard wood floors but haven’t yet..I
think this will help alot… As far as the foods, I notice when I 1st eat
something I am allergic to.. my eyes get itchy and start swelling up..For my
skin, I think the major cause is emotions… Anyways, hope your able to find a
balance..
David
March 18th, 2006 at 4:56 am
Hello Sheri,
You have pretty much explained my situation also. I had eczema as a
child and now suffer from extremely dry skin. I have also had very
dry hands and feet. I even hate to shake people’s hands cause a lot
of the time they will say, your hands are so dry. My feet are so dry
and never moist that I can’t even walk around barefoot because I
slide around on the floors and have actually slipped and fell
before. I do have hyperlinear palms also. At one time a
Dermatologist told me that I have Ichthyosis, which I am not too
sure about. I also have KP, not quite sure of the real name but its
red like bumps, chicken skin they call it. I do use LacHydrin 12%
which does help and is the only lotion that helps the most. I get
this as a RX and am not sure if is available without one. I know you
can get the 5% LacHydrin at Wal-Mart but it’s not as good. I too
have purchased many different creams and lotions. I have pretty much
given up on that and saved my money. I also have taken Evening
Primrose oil that has helped my skin. I completely understand what
you are going through and we are the same age so I really know how
tough it is. Good Luck and if I do come across a miracle I will let
you know!
Karena
March 18th, 2006 at 12:35 pm
Thank you for responding Karena! I have gone to a few dermatologists to get
Ugggggg………… I don’t think I have any other skin
I just want to help her if possible before she has to deal w/it as we
some type of cream or something, but they never do. They say to use a standard
cream……it is so frustrating. I wonder if I go and just state would I would
like to try if they will do it. It is probably worth a shot. I also share
your fear of shaking others hands. I have been told the same thing, you have
dry hands, or you need some lotion! It is so frustrating! As if I don’t use
lotion ALL the time
issues - in the winter I do get flaky skin and feels itchy after a shower, but
usually as I get used to the heated air, it seems to go away………. Do you
have any children, and do they have any of these issues? My daughter is 7
months, she has wonderful skin, but I do see many fine lines in her palms, and I
worry all the time that she will develop my awful hands. I put creams on her
hands so much - she is probably sick of it! Poor
thing
do. Kids can be HORRIBLY MEAN to each other you know? Did you have this as a
child??
I am definatley going to try evening primrose oil - is it a pill or liquid?
You have pretty much explained my situation also. I had eczema as a
child and now suffer from extremely dry skin. I have also had very
dry hands and feet. I even hate to shake people’s hands cause a lot
of the time they will say, your hands are so dry. My feet are so dry
and never moist that I can’t even walk around barefoot because I
slide around on the floors and have actually slipped and fell
before. I do have hyperlinear palms also. At one time a
Dermatologist told me that I have Ichthyosis, which I am not too
sure about. I also have KP, not quite sure of the real name but its
red like bumps, chicken skin they call it. I do use LacHydrin 12%
which does help and is the only lotion that helps the most. I get
this as a RX and am not sure if is available without one. I know you
can get the 5% LacHydrin at Wal-Mart but it’s not as good. I too
have purchased many different creams and lotions. I have pretty much
given up on that and saved my money. I also have taken Evening
Primrose oil that has helped my skin. I completely understand what
you are going through and we are the same age so I really know how
tough it is. Good Luck and if I do come across a miracle I will let
you know!
Karena
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March 18th, 2006 at 8:58 pm
Hi,
For dry hands and feet, perhaps you can try neem cream which I found
very useful. Dry hands and feet are only an external symptom. The
real problem is in your intestine which must be healed to overcome
food allergies and eczema.
ymp
March 19th, 2006 at 1:55 am
But is this the case if you were born this way? Apparently I have had issues
with dry hands and feet since birth…………..I have no food allergies to my
knowledge either……… Where can you find neem cream?
ymp
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March 19th, 2006 at 4:46 pm
Hi Sheri,
Yes I do have children. My son is 2 years old and has
severe eczema and I am pretty sure he will have the
dry hands and feet like me. His hands have quite a few
lines also so I guess he will have all my troubles. My
daughter is 7 months old and she has beautiful skin
and looks very normal. I don’t think she will have any
problems because both my son and I developed severe
eczema when we were 6 weeks old. I didn’t do anything
different with the kids so obviously is about a 50%
chance. You can go to www.lac-hydrin.com and order
there or you can try the weaker one from Wal-Mart. I
used evening primrose oil as a pill, not sure if there
is a liquid. I also chose it cause it helps with PMS
which I get here and there. I haven’t taken it for
awhile cause I have been either pregnant or nursing
for the last 3 years and wasn’t sure if it was safe. I
know that cod liver oil, fish oil, flaxseed oil and
borage oil are also supposed to help the skin. You can
do some research and find what sounds best to you. I
haven’t tried the Neem cream that I read someone else
suggested. I have found that alpha hydroxy acid helps
the best to get rid of the dry dead skin.
Karena
March 19th, 2006 at 11:56 pm
I sent the Renew Lotion today. I put in a few catalogues and a previous
Leadership in Action magazine. Let me know when you get the lotion.
March 20th, 2006 at 6:18 am
> But is this the case if you were born this way? Where can you find
neem cream?
No, my case is adult eczema caused by gluten. I buy Therapeutic Neem
Cream from
ymp
March 20th, 2006 at 11:14 am
Thank you so much!
Sheri
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March 20th, 2006 at 11:15 pm
Sheri,
Heidi
I have bad eczema on my face and used to have it on my hands terribly. It is
only on my face now, and it went away COMPLETELY on my hands after I stopped
working at a Mexican restaurant. I have no idea why it’s still on my
face…However, lately it is better and I think it’s because 1 mo. ago I started
taking:
flaxseed oil pills (2000 mg/day-2 pills)
fish oil pills, omega 3 fatty acids (2000 mg/day-2 pills)
evening primrose oil pills, (3900 mg day-3 pills)
I asked my derm. and she said that this amount was fine and safe to take.
I have also started "experimenting" to see which foods make my face worse, and
have since eliminated apples (weird, I know), spicy foods, Mexican food, melted
cheese, pizza, melted butter, pepper, and spaghetti sauce. Interesting because
my "food allergy test" showed I was not allergic to anything, so I don’t get
that…but all of those foods REALLY trigger my rashes.
When I had the bad eczema on my hands I would use eucerin lotion (obviously) and
steroid cream and sometimes would sleep with gloves on with a THICK layer of Bag
Balm rubbed all over my hands. This was very uncomfortably hot, though, so
sometimes I’d wake up having taken the gloves off in the night! It really did
help, though, when I kept them on all night. Something cheap to try, anyway,
and it can’t hurt!
I don’t know whether it’s the oil pills or the food that is helping more, but
I’m guessing a combination of both. I’ve heard amazing testimonials about
evening primrose oil, though, and also read in many places that people with
eczema are lacking in omega 3 fatty acids. These pills are good to take for a
lot of reasons, not just eczema!
I hope that my suggestions help! I know it is so frustrating.
Sheri
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March 21st, 2006 at 5:55 am
Does anyone have any advice for eczema on your face? Elidel does nothing for
Heidi
me, and I am not supposed to use too much of the hydrocortizone cream. Anyway,
I’m elim. certain foods and taking flaxseed, EPO, and fish oil right now. Using
eucerin regular lotion as well as the toning cream for redness and redness
control face lotion, too. It has gotten much better and I feel better about it
but it is always "there"…meaning one too long hot shower and it is red and
obvious on my face. Does anyone have any other natural means of management?
Does tanning help at all? Anything else? I also put vics vaporub on my face
before I eat foods that I am not sure if they’ll bring out the rash a little or
not, or if I can feel my face itch. My derm. said that was okay. It makes it
feel so good, but doesn’t nec. make the rash go away. I can’t feel the itch,
though, which is nice. Thanks for any advice!
Sheri
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March 22nd, 2006 at 9:27 am
Did you handle food products with yeast in them?
My Grandfather couldn’t work in a bakery because any time he touched the
dough his hands would break out in eczema. It may be a yeast allergy. Many
doctors don’t "believe" in it unfortunately.
Alison
Sheri,
Heidi
I have bad eczema on my face and used to have it on my hands terribly. It
is only on my face now, and it went away COMPLETELY on my hands after I
stopped working at a Mexican restaurant. I have no idea why it’s still on
my face…However, lately it is better and I think it’s because 1 mo. ago I
started taking:
flaxseed oil pills (2000 mg/day-2 pills)
fish oil pills, omega 3 fatty acids (2000 mg/day-2 pills)
evening primrose oil pills, (3900 mg day-3 pills)
I asked my derm. and she said that this amount was fine and safe to take.
I have also started "experimenting" to see which foods make my face worse,
and have since eliminated apples (weird, I know), spicy foods, Mexican food,
melted cheese, pizza, melted butter, pepper, and spaghetti sauce.
Interesting because my "food allergy test" showed I was not allergic to
anything, so I don’t get that…but all of those foods REALLY trigger my
rashes.
When I had the bad eczema on my hands I would use eucerin lotion (obviously)
and steroid cream and sometimes would sleep with gloves on with a THICK
layer of Bag Balm rubbed all over my hands. This was very uncomfortably
hot, though, so sometimes I’d wake up having taken the gloves off in the
night! It really did help, though, when I kept them on all night.
Something cheap to try, anyway, and it can’t hurt!
I don’t know whether it’s the oil pills or the food that is helping more,
but I’m guessing a combination of both. I’ve heard amazing testimonials
about evening primrose oil, though, and also read in many places that people
with eczema are lacking in omega 3 fatty acids. These pills are good to
take for a lot of reasons, not just eczema!
I hope that my suggestions help! I know it is so frustrating.
Sheri
> Thank you for responding Karena! I have gone to a few dermatologists to
> get some type of cream or something, but they never do. They say to use a
> standard cream……it is so frustrating. I wonder if I go and just state
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March 22nd, 2006 at 6:17 pm
> How do you take ozone baths?
>
Just bubble ozone gas from a water ozonator into bath water for 30
minutes or longer and bath in the water.
ymp
March 24th, 2006 at 1:53 am
Thank you so much for your reply - I’m definatley going to try that. I will go
tonight to get the pills you mentioned below!
Sheri
Sheri
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March 24th, 2006 at 1:54 pm
You are welcome. I really hope this helps you! It is the most FRUSTRATING
thing.
Sheri
Sheri
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March 30th, 2006 at 7:19 am
Nikki -
I want to apologize for taking so long to respond to your questions inquiring
about my long history with eczema and how it could relate to your daughter,
Abby.
First of all, I live in Reno, NV, which is probably one of the worst places I
could choose to live due to the fact that the air is so dry and there is
absolutely no humidity whatsoever. Also, I cannot fail to mention the fact that
I live in the desert and am allergic to dust! Like most others, my skin becomes
drier during the winter months where it tends to become really flaky and even
chapped, no matter how much creme or lotion I use. However, the time of year
that my skin seems to be at its worst, is when the seasons are transitioning
from one to the next. Not so much in the spring, as it is in the fall. This is
a time where my face tends to crack in just about every crease including the
corners of my mouth, eyelids, chin, earlobes, neck, and sometimes forehead. I
think this could possibly be due to having to turn on our heaters that have been
turned off all summer where dust and pollens have been allowed to accumulate.
Recently, I have been discovering that dirt and dust are
more aggravating to my eczema than I had once thought. But, I do know there are
other contributing factors to my situation; between my many food
allergies/sensitivities, asthma, owning pets, stress, emotions, and generally
not always eating right or getting enough sleep. So pinpointing what they are
becomes very difficult. I’m 32 years old and I still don’t quite know.
Concerning your daughter and what I have learned in my experiences with eczema,
is that when my skin is irritated; whether it be hives, cracked, itchy, or
oozing; the only thing I have found to work for me is adding baking soda to my
bathwater. I’m sure it is not necessary to use this much, but I put the whole
box in. It seems to soften the water and is very soothing to the skin (does not
sting much like showers can). It works much like Aveeno but is a lot cheaper.
It even seems to help exfoliate the dead skin layer that tends to build up and
become itchy. I swear by this because at times it has been the only thing that
would offer some relief when honestly I couldn’t stand living in my own skin!!
When my skin isn’t inflamed, to this I’ll add a little bit of lavender oil or
some other type of bath oil. But not to much because it can sometimes irritate,
making my skin itchy. Afterward, I do not use a towel and I apply moisturizer
right away while my skin is still wet. If I
wait too long, I have to get back into the water until my skin is moist again.
Applying moisturizer to my skin when it is dry only irritates it further. It
doesn’t seem to become fully absorbed but rather to just coat the skin. As far
as what moisturizer to use, I have had the most success with Curel lotion and
Cetiphil creme in the tub. Some moisturizers feel great when you put them on,
but an hour later you become dry and itchy again. Another moisturizer I really
like, but costs a little bit more, is Corium 21 Skin Care. I found it at a
kiosk in the mall, but you can get it through the mail. Let me know if you
would like the information on ordering it. Sometimes it’s worth the extra
expense.
As far as to why Abby screams and cries during her showers could be due to
chemicals like chlorine that are added to our water are stinging her skin.
People don’t think plain water can hurt, but to skin that is already irritated,
chlorine can feel like acid. At the beginning of the year I purchased a filter
for my shower head that claimed to remove chlorine and other synthetic chemicals
from your shower water. I loved it at first but then decided that it wasn’t
helping anymore. Then when I decided not to reinstall it after replacing my
shower head, after about a week without it I noticed that my skin was becoming
drier. So to make a long story even longer, I am waiting for my replacement
filter so I can reinstall it. Also, I’ve even noticed that my hair has become
much drier without it. They unfortunately do not have an attachment for the
bathtub, but they do have these vitamin C tablets that you ad to the bath water
and is supposed to neutralize the chlorine and other
contaminants. I have yet to try these so I’m not sure if they actually work or
not. Again, let me know if you’d like more information on these products and I
will email you the information.
I hope you find at least some of this to be helpful and hopefully what I’ve
found to work for me will also work for Abby. I could go on for days about what
I have tried and about what works and doesn’t work. If you ever have any more
questions, feel free to email me. I am happy to be of any help.
Best wishes to you and Abby,
Kristen
Thanks…Nikki
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March 30th, 2006 at 10:46 am
Hi Kristen,
I’ve basically cured myself from a never ending flare up of atopic eczema. I
am unsure if it was the result of a Chinese herbalist, or avoiding ALL citrus
fruits, or the fact that our water tanks have now filled up with pure rain
water. I also cannot use ANY soaps on my skin, and have been told to avoid
anything with cholesterol in it (including anything containing coconut). I only
use
‘Alchemy" soap free organic wash (around $13 AUD), and "A’kin" body
moisturiser (around $20AUD). I have tried to go back to organic soaps but they
sting my
skin and have caused a small flare up, so its back to avoiding any such
products. As I am a vegan I refused to use of the products that the
dermatologists
tried to make me use, all scripts were promptly thrown in the bin as most were
cortisone based and only tends to make the condition worse by thinning the
skin. I kept on trying because I knew that there was a way to get my body back
in
balance as, although this is apparently hereditary, I had never suffered the
symptoms until just over 2 yrs ago.
I hope this helps.
Regards
Charmaine
P.S. the only reason I am now unable to sleep at night is due to the humidity
in the air!
April 3rd, 2006 at 10:02 am
My son is 2 years old with severe eczema and I just
wanted to tell everyone of a soap we have started
using. It is Dr.Bronners Pure Castile Soap. There is
many different kinds and we are using the unscented
mild liquid one. It is great and it is really helping
my son’s skin to look better. It has different oils in
it and 100% vegetarian. It is also cheap. I got it at
www.drugstore.com. I was able to get a small 4 oz.
small bottle to try and now I think I have found the
best, even for my extremely dry skin.
Karena
April 4th, 2006 at 5:23 am
Hello all eczema suffers… well I have tried lots like the rest of you and now
I am trying something I haven’t done before… I have started going to the
tanning bed and it looks like it has been helping the itch and dryness…. I
have only gone a couple times but seems to be helping… I am going to keep up
on it and go a couple times a week to see what it does with my skin…
David
April 4th, 2006 at 9:03 am
That’s a good idea, however you may wanna check what kind of uv rays they use at
the tanning salon. UVB rays are best for your skin.
David
Visit your group "eczemapsoriasis" on the web.
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April 7th, 2006 at 4:45 pm
I used to get light treatments through a Dr. So it was all controlled. Hard
to say if it helped, as I was using medication too back then. I stopped when
I no longer worked in the city. I have since moved out of state. Had
periods of really bad flare ups after that time but also have been much better
in
recent times. Hard to say what has helped.
David